Sometimes people ask what life with Dravet syndrome really looks like. This video holds pieces of our story — ambulance rides, hospital rooms, seizures, and moments that changed everything. When Rosie was diagnosed with Dravet syndrome, we were told there was a 1 in 5 chance she might not reach adulthood. That statistic never leaves your mind as a parent. But what people don’t always see is the other side of that story — the strength, the resilience, and the fierce love that carries families lik
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