More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...

CATSKILL — The Greene County Legislature designated August Spinal Muscular Atrophy Awareness Month. The muscle-wasting disease first came to the attention of the legislature by former county employee ...

CHESTERFIELD COUNTY, Va. (WRIC) — Spinal Muscular Atrophy (SMA) is a genetic disease that severely weakens muscles and causes developmental delays. It affects one in 10,000 American babies in the U.S.

Nelson's twin daughters, Ocean Jade and Story Monroe, have been diagnosed with spinal muscular atrophy (SMA) Type 1 ...

Jason Mast is a general assignment reporter at STAT focused on the science behind new medicines and the systems and people that decide whether that science ever reaches patients. You can reach Jason ...

Jesy Nelson is opening up about her babies’ health. After the Little Mix alum’s mom noticed that her 8-month-old twin daughters Ocean and Story—whom she shares with fiancé Zion Foster—were showing ...

Risdiplam, an oral pre–messenger RNA splicing modifier, is an efficacious treatment for persons with symptomatic spinal muscular atrophy (SMA). The safety and efficacy of risdiplam in presymptomatic ...

Jesy Nelson and her former fiancee Zion Foster have committed to co-parenting their twins, who have been diagnosed with ...